Yesterday was a challenge of a day. It started with everyone in this house getting up on the wrong side of the bed, and ended in a full mental break down.

One of the most difficult parts of parenting a special needs child is finding your team. Your team of people who understand your struggles, have experience, know the resources, and reach out with a helping hand. Most doctors, teachers, and therapists just don’t know what it’s actually like raising a child with a disability, much less how to help.

Your team of other parents that have been down the same road as you become closer than family. They become your biggest supporters, cheerleaders, helping hands, counselors, and sounding board.

With a child that has one, if not more, rare conditions it’s hard to find people in real life that can help. With our son, there are only a handful of children on our side of the state with one of the same conditions, much less someone in our local area to connect with.

Here is where social media becomes a life line for so many parents. You can connect with people across the globe, ready and willing to help you, listen to you, give valid advice, and point you in the right direction. Taking away that group of people and resources has been the hardest part of quitting social media for me.

Yesterday I needed to ask a question about a specialist, get advice, and find a solution. But I couldn’t. My Google searches lead nowhere, 8 phone calls ended in deadlines and unresponsive automated answering services, and panic grew in my chest.

I didn’t reinstall social media on my phone. Instead, I had to sit and feel those feelings. Those bubbling, angry, scared, overwhelmed feelings. Everything culminated in a mental break down on the side of the road, while my babes sat safely in the vehicle.

I don’t have a solution for this part of the no-social media journey, but I do know it shouldn’t feel this hard. It should be easier to connect, find the answers we seek, and find the community we so desperately need.